Chronic and Rare Disease Management
Expert care for chronic and rare diseases in India.
About ADVANCED Centre for Chronic and Rare Diseases (ACCORD-
Background
Rare diseases, once considered medical curiosities, are now being increasingly recognised due to remarkable advancements in genomics, molecular biology, and diagnostic technologies. The completion of the Human Genome Project and subsequent research have revolutionised our understanding of human diseases. Despite this progress, the underlying genetic or phenotypic basis for many rare conditions remains poorly understood. Globally, rare diseases affect a small percentage of the population individually, but collectively, they constitute a significant public health challenge.
In India, the magnitude of this problem is enormous. It is estimated that nearly 70 million people in the country suffer from one or another form of rare disease. Yet, the number of institutions equipped to diagnose, manage, or conduct research on these conditions is alarmingly low. As per current recognition, only 63 diseases are officially categorised as rare diseases in India, broadly divided into three categories based on their diagnostic and therapeutic availability. However, only a handful of diagnostic or treatment centres exist, and almost all are confined to government-run institutions. This limited capacity leaves a vast majority of patients undiagnosed, untreated, and often mismanaged.
Parallel to this, there exists a large group of chronic diseases—such as diabetes, hypertension, autoimmune disorders, chronic kidney disease, and neurodegenerative conditions—that, while not classified as rare, demand continuous medical supervision, periodic investigations, and multidisciplinary management. Patients suffering from such long-term illnesses often face difficulties in accessing comprehensive care under one roof. The absence of coordinated management frameworks and the need for repeated hospital visits lead to treatment fatigue, increased healthcare expenditure, and compromised quality of life.
Thus, there exists a significant gap in the healthcare ecosystem—both in terms of specialised diagnostic infrastructure and in providing integrated, affordable, and sustained care for patients with chronic and rare diseases.
Our Mission
Vision and Mission
Vision:
To build a world-class, integrated centre of excellence dedicated to the diagnosis, treatment, research, and compassionate care of patients with chronic and rare diseases.
Mission Objectives:
· To provide comprehensive diagnostic facilities using advanced genomics, molecular biology, and imaging technologies.
· To offer personalised treatment plans through multidisciplinary consultations.
· To promote research and innovation for better understanding of disease mechanisms and development of novel therapeutics.
· To establish patient-support services, including counselling, physiotherapy, and palliative care.
· To facilitate public-private collaborations and CSR participation for sustainable operation and expansion.
· To create a centre of training and capacity building for healthcare professionals in this niche domain.
Expected Outcomes and Impact
· Provide affordable and accessible diagnostics for chronic and rare diseases in North India.
· Reduce diagnostic delays and misdiagnoses by integrating genomic and molecular tools.
· Serve as a centre of excellence for training clinicians and researchers.
· Establish a national database for rare and chronic disease patients, contributing to policymaking and public health planning.
· Offer compassionate, end-to-end care to patients and families, setting a benchmark for similar institutions.
· Attract national and international collaborations in research and clinical trials.
· Symbolising the hope for longer and better life our centre has a post-fix “Asha”, which in Hindi mean hope.
Contact Us
Better yet, see us in person!
We love our customers, so feel free to visit during normal business hours.
Advanced Centre for Chronic and Rare Diseases
Advanced Centre for Chronic and Rare Diseases (ACCORD), Gaushala Road, Ansal Villas, Satbari, New Delhi, Delhi, India
Hours
Open today | 09:00 am – 05:00 pm |
